Publications by the authors relating to DisDAT


Regnard C, Mathews D, Gibson L, Jenson C. (1995) Identifying distress. In, Regnard CFB, Hockley J eds. Flow Diagrams in Advanced Cancer and other Diseases. London: Edward Arnold. pp 185 –8. (Also available on www.helpthehospices.org.uk, click on ‘e-learning’)
Regnard CFB, Hockley J (1995) eds. Flow Diagrams in Advanced Cancer and other Diseases. London: Edward Arnold.
Regnard C, Reynolds J, Watson B, Matthews D, Gibson L, Clarke C. Understanding distress in people with severe communication difficulties: developing and assessing the Disability Distress Assessment Tool (DisDAT).
J Intellect Disability Res. 2007; 51(4): 277-292.
Regnard C, Hockley J. (2004 ) A Guide to Symptom relief in Palliative Care, 5th ed. Oxford: Radcliffe Medical.
Regnard C, Matthews D, Gibson L, Clarke C. (2003) Difficulties in identifying distress and its causes in people with severe communication problems. International Journal of Palliative Nursing 9(3): 173-6.

Other useful publications
Banat D, Summers S, Pring T. (2002) An investigation into carer’s perceptions of the verbal comprehension ability of adults with severe learning disabilities. Br J Dev Disabilities 30: 78-81.
Benedetti F, Arduino C, Vighetti S, Asteggiano G, Tarenzi L, Rainero I (2004) Pain reactivity in Alzheimer’s patients with different degrees of cognitive impairment and brain electrical activity deterioration. Pain 111: 22-9.
Coulson M. (2004) Attributing emotion to static body postures: recognition accuracy, confusions and viewpoint dependence. Journal of Nonverbal Behaviour 28(2): 117-39.
Elliott R, Wright L. (1999) Verbal communication: what do critical care nurses say to their unconscious or sedated patients? Journal of Advanced Nursing 29(6): 1412 – 20.
Feldt KS, Warne MA. (1998) Examining pain in aggressive cognitively impaired older adults. Journal of Gerontological Nursing 24(11): 14-22
Fullarton A. (2003) Examining the comfort of the unconscious patient. European Journal of Palliative Care 9(6): 232-3.
Glennen SL. (1997) Introduction to augmentative and alternative communication. In, Glennen ST, DeCoste DC, eds. Handbook of Augmentative and Alternative Communication. San Diego, Singular Publishing Group pp3-19.
Hurley AC. Volicer BJ. Hanrahan PA. Houde S. Volicer L. (1992) Assessment of discomfort in advanced Alzheimer patients. Research in Nursing & Health 15(5): 369-77.
Kovach CR. Weissman DE. Griffie J. Matson S. Muchka S. (1999) Assessment and treatment of discomfort for people with late-stage dementia. Journal of Pain & Symptom Management 18(6): 412-9.
Kovach CR. Noonan PE. Griffie J. Muchka S. Weissman DE. (2002) The assessment of discomfort in dementia protocol. Pain Management Nursing 3(1): 16-27.
McCarthy M. Addington-Hall J. Altmann D. (1997) The experience of dying with dementia: a retrospective study. International Journal of Geriatric Psychiatry 12(3):404-9.
Morse JM, Bottorff JL, Hutchinson S. (1994) The phenomenology of comfort. Journal of Advanced Nursing 20: 189-95.
Murdy J (1999). Understanding the issues of palliative care for someone with a learning disability. In, Blackman N. ed. Living with Loss. Brighton: Pavillion Publishing.
Tuffrey-Wijne I. (2003) The palliative care needs of people with intellectual disabilities: a literature review. Palliative Medicine 17: 55-62.
Whitehouse R, Chamberlain P, Tunna K. (2000) Dementia in people with learning disability: a preliminary study into care staff knowledge and attributions. British Journal of Learning Disabilities 28: 148-153.
Younger J. (1995) The alienation of the sufferer. Advances in Nursing Science 17: 53-7.